Our will to make it!

All 3 of our children are autistic
All three boys are miracle babies, they all have a reason they shouldn’t be alive, but they beat the odds… when i was 18 weeks pregnant with MaCaleb i had to have emergency galbladder surgery due to severe pain and being jaundice, but somehow he survived My next pregnancy was Twins Cadence and Madalyn, at around 22 weeks Madi’s heart stopped, i continued carrying her to ensure Cadence’s survival,Cadence somehow kept thriving though and a few weeks later i delivered Cadee at 4lbs 2ozs, and my angel baby Madi And then there was Marchie a baby boy born dieing, as soon as the doctors figured out what was wrong with him and how bad it was, they had him flown to the nearest NICU, about 100 miles away…MaCaleb 11 is autistic, has bi-polar disorder, ADHD, migraines, and a severe anxiety disorder. Our youngest March age 7 is austistic, OCD, SPD, ODD, has many delays, he was a NICU baby, he spent the first 6 months living in the NICU, while in there he had many blood transfussions, heart surgery and many other things. He was never expected to survive to his first birtbday but has beaten all the odds so far, he has a weak heart, hypo plastic lungs and severe asthma. And then there is Cadence age 8, medically cadee is much worse that his brothers… he has aspergers, epilepsy,elisodic mood disorder, fibromyalgia, arthritis, episodic mood disorder, vitamin D and B deficiencie, severe anxiety disorder, EOE, a year ago Cadence had a stroke and a seizure leaving him with less muscle tone on his left side, it also caused a TBI (traumatic brain injury) its left him with short term memory, forgetfulness, confussion, and severe tremors. 3 weeks ago Cadee almost died because of valproic acid poisioning that has now caused damage to his heart, liver, and kidneys. My husband and I dispence over 3 dozen medications multiple times a day, and we have a little over 2 dozen doctors. Our doctor’s offices range from an hour away to 6 hours away.

Tabatha Barnes
Carlisle, PA