So often, those outside life on the spectrum, have no understanding of what life actually entails for families living with a spectrum related diagnosis. I've heard from other families, it's an isolated life, often compared to living on an island, or in a bubble they can't escape.
"Normal" activities are outside our reach due to sensory issues, social issues or meltdowns that result from overstimulation. Life assumptions from neuro-typical families, who think nothing of homes with common walls, or seat assignments on planes that separate family members, are of special concern to a spectrum family who understands the risks involved in attempting such an endeavor as travel or relocation.
Our children most often DO NOT transition well resulting in meltdowns, while we try to anticipate triggers, we can't always control a situation. People outside the spectrum simply can't understand our world nor the accommodation requests we make, often labeling us as "not easy or downright difficult". In all fairness, unless you have been personally touched by a spectrum family, it's impossible to comprehend the life we live, so it's my hope, my post will educate those within my reach. Please be kind, please be patient as our lives are some of the most challenging lives faced 365 days a year, 24 hours a day.
I'm personally very thankful for a loving supportive husband who has stood by his family and steps in when life dishes out more than one person can handle. For those sports fans out there, we function similar to tag team wrestlers . You stay in the ring until you've had the snot beat out of you, barely able to stand, then tag out for a well deserved rest to hide your tears, frustration and yes even anger.
Life on the spectrum is not easy, but I wouldn't change my life for anything in the world! My son has taught me about strength, courage, innocence and acceptance, all characteristics everyone could use more of.
About the author: Mom to an almost nine year old Autistic boy, diagnosed a year and a half ago.
Winthrop, ME