Stories of Hope

Share your inspiring, hopeful story of how autism touched you.

I cried

Jonathan was diagnosed with PDD-NOS at 1.5. For a year, various therapists came to our apartment to work with him. 'At least he doesn't have autism' I comforted myself.

At 2.5, we had him evaluated by a more professional team at Columbia Prebyterian Hospital. That was a very very thorough evaluation that lasted 4 or 5 hours over two days.

A few weeks later, we came in in for the conference that detailed the findings. The psychiatrist's first sentence 'your son has autism' was the only thing I heard for the next 45 minutes. I have no idea what the neurologist said. My wife took notes while I cried silently under the brim of my hat.

Earlier that day, fearing the worst, I started searching the Internet, and learned about Deafeat Autism Now medical protocols that supposedly cured some kids. At the end of the meeting I stopped crying and asked the neurologist if they had seen any positive results and cures. She said 'no'.

The next day was the start of my curing my son - damn the neurologist. And damn the torpedoes. I went full steam ahead with DAN medical interventions. My son was going to learn to talk and lead a normal, independent adult life.

My marriage was never good to begin with. And J's mother never had any motherly instincts. I realized that with J's autism, he didn't have any emotions to care if she moved out. So that's what happened. 6 months after the diagnosis.

Jonathan is turning 11 soon. He's in a regular 5th grade class with a para professional looking over his shoulder. He talks fairly well, though his use of tenses is extremely basic. He's never used the subjunctive. He's been taking tap, ballet, and hip-hop classes for 3 years. It's his passion. Last year I started him on piano, more for the finger dexterity therapy than the musical education.

By his appearance and behavior, Jonathan seems very normal. But I see where he is not. But he is always improving.

I thnk he's going to be an okay, independent adult.

Anonymous
Woodside, NY

I love my family

This may sound weird for you to know that I am a NT. Truthfully I hadn't really known about autism besides a commercial here and there. When I started dating my boyfriend for about a month, his mother came to me and told me not only was he autistic but he also had aspergers. To add to that his younger brother and sister are autistic as well and his sister has sanfilippo (I apologize if I spelled it wrong) disease. After a year and 3 months. My boyfriend and his family have changed my life. I love them all and I'm just so happy that they consider me like family. I love them so much and I wouldn't want to change a thing about any of them. I love you Josiah, Justice, Calina, Dom, and especially Melissa. She's like a mother to me and I always look up to her for being so strong. Thank you Melissa, for teaching me so much over the year we've had together. I will always love my family

Love, Emily

Emily
Lawton, OK

Our little joy Aiden Cole

Our little joy Aiden Cole

Aiden is the rock of our family, he is the strongest most loving soul in our lives and he has had our hearts since the day he was born. My mom has recently posted his story and life on here but there is so much more to know about Aiden that simply there is not enough paper in the world to write everything about our little love. I don't believe that autism is a incurable disorder all it takes is knowledge and understanding to help your child move forward.

Autism does not define Aiden, he has so many talents his feelings are just like yours and mine, he learns things because we show him and not just tell him, he still needs help with his social interactions because he gets scared when alot of people are around and we know that too requires patience. Our family NEVER has had thoughts like "If he just would" or "Why can't he" after all he did not ask to have AUSTISM, we view his autism as a different ability and not a disability, we look past his limitations and see the gift that autism has given him.

Aiden is well mannered, he will always say please & thank you and if he hears you sneeze even if he is three rooms down the hall he will say "Bless you" he loves riding the bus to school, loves making his rounds at his school campus to visit favorite teachers and office staff, loves his Ipad, loves his teacher, loves his family, loves hugs, kisses, loves Jesus and yes he knows what love is.

I can't wait to see what else Aiden learns this year and what he becomes in the future and that can only happen with us his family as his foundation.

Stephanie Espinoza
Devine, TX

My special gift.

My special gift.

Ava was everything I ever wanted in a baby..just perfect..love at first sight. Ava was growing normal by the 6month mark. When we had her immunized things really slowed down for her as in weight. Ava is a very happy child..playing,even social with people. But something was quite different..she was not responding to questions,even her own name by the age of 2. One thing Ava did do was memmorize commercials,songs even different languages,cartoons. She even fell in love with numbers..treating them like they had feeling..as humans. People would often say that was "normal"..and she would "get over it"..By the age of 3-4 her vocabulary was at the age of 12-18 months but yet used big words that most people didn't know for example."disidiuas trees" opposed to just staying an apple tree or something. Shapes like hexagon,pentagon,octogan.Naming traffic lights so she would know where she was. Ava has her meltdowns and is super stubborn.( We are working on it) She loves skateboarding,drawing,singing and music, She is now 6 years old and she just simply amazes me..with everything she does.When Ava was diagnosed with PDD-NOS, I wasn't suprised,upset,devasted, I just felt relieved,because now we can move on and as a mother I am like bear, I will do anything. I spent alot of time at home even though I am a workaholic..just kept working at different things, no matter how tiring it was and is. It's all worth it. Ava is in a wonderful school who focuses on her talents and her special gifts. I wouldn't change Ava for anything. She is my gift not my burden. She is my heart and soul.
Love you kiddo.

Debbie
Coquitlam BC, Canada

Teach me to love...

My son David was placed into early intervention by a fabulous team in Lake County, Il at the age of 3. I thought I was doing everything right to ensure my little boy would grow out of this undiagnosed behavior problem. At 8 he was diagnosed with PDD-NOS. they called high functioning Autism. As a parent, we teach our children how to behave. What is appropriate behavior and what is not. Needless to say, that doesn't work so well with children on the spectrum. A counselor who also had a child on the spectrum said to me, you can not change the way he views the world around him or how he reacts to it. You have to step into his world because he can not step into yours. It was profound to me that I was making things worse. He (his behavior, outbursts and fears) weren't the problem as much as how i was handling it was. So I started loving David from a different place within myself. It allowed him to feel accepted, loved and at last normal. So thank you David for your patience and showing me what true unconditional love really is.

Vera
Nora Springs, IA

He's a good bird but he's angry, my son, elijah.

He's a good bird but he's angry, my son, elijah.

i had my son elijah when i was 19. He was such a happy baby,& was always smiling, playing with his toys, & he really took care of his toys i remember him keeping his blocks with blocks & cars with cars, lining them up. Around 9 months he started throwing bad tantrums by banging his head as hard he could & all i could do was hug him & get him to stop.i knew there was something wrong but i was in denial, i thought he's only a toddler it will pass, but it didn't, every-time we went out some where he would go ballistic because of loud noises, or get scared of things he didn't like or didn't understand, or he would always try to escape, runaway or wonder off, i couldn't keep my eyes off of him, i always worried, i just wanted him to be happy, it was hard especially because he wouldn't talk, & i could tell he would get frustrated because we couldn't communicate. finally we spoke to are doctor, went to a neurologist & therapist & they finally diagnosed him with autism spectrum disorder, speech disorder & coordination disorder, while the Dr. was explaining to my husband & i, i couldn't help but to cry i didn't understand what autism was, so many things raced through my mind, was he going to be okay, how can i help him, did autism mean all my dreams & all my hopes for my first one & only son would be gone? when i got home we started researching for information about autism & when we finally figured it out i couldn't help but to smile at my boy, siting next to me playing with his angry bird toy set, building his blocks putting the green little pigs on the blocks then throwing the angry birds at them, as his blocks & piggies tumbled down, he would laugh so hard, he loves angry birds, it was then that i realized, Elijah the way you see the world is a gift, & we feel so blessed.

eileen fluty
brownsville, TX

Samuel Jacks' Story

Samuel Jacks' Story

Samuel was given to God since before his birth. For the months that we waited for him we prayed daily for a child that would some day be a Pastor or a missionary and give his years to serving others. We knew even then that he would be an important, loved, nurtured, sweet child. We expected him to be typical and never thought otherwise. The medical dilemmas began early on. He had a helmet fitted for plagiocephaly, his stomach never seemed calm, and often we felt very disconnected from him. While our other children desired holding and coddling, Samuel was happiest on a blanket with one or two toys. While others around him began speaking and communicating with one another, Samuel enjoyed spinning his brothers bicycle tire and watching it go around. Some days he would just gaze to we didn't know where and seem like he didn't even know we were there. In 2012 my husband and I discovered him playing in gravel in the yard and realized he was rubbing it into his hair. That was the proverbial straw.
After three months of experts galore we were told what we secretly already knew. No aspbergers, no slightly concerned looks. Just straight up but quite definite Autism. I'd like to say I was shocked or surprised or dismayed but I was to relieved to be any of those. We finally had the answer! What made our boy difficult but wonderful, frustrating but fabulous, annoying yet marvelous was there on the page right in our faces. Incredible! A new journey!
We gathered resources, therapists, fancy foods, and our courage and settled in for the long haul. My Samuel is amazing! Every day he teaches me something I'd never have imagined the day before. He smiles when he sees a fire alarm, he laughs very loudly if someone gets hurt and he sings in the tub. Every day there are small victories and every day there are huge challenges but he is still God's child and I'm so glad to be entrusted with him. Thank you God for Samuel.

Denise Wilson
Lompoc, CA

My special little man.

My son has been different since birth. He never really liked being held. He preferred to be swaddled and then left to his own devices. When his 2nd birthday came and went and we still weren't hearing more then 10 words out of him (let alone full sentences), I got worried. I took him to a doctor that tested him. The results came back that he has PDD-NOS. I was a little scared at first, because I didn't know anything about the disorder or how his life would go. I immediately began to research therapies that are helpful. I found every agency in my area that could help us (including ones for when he is older). It has been 5 years since we heard the diagnosis. There are days when I feel like I have somehow failed him, but then he looks at me and smiles and laughs and all my worry and stress just goes away. I have to keep reminding myself that raising him will always be a learning process. What works today may not work tomorrow. I know that he will always keep me active and alert, and for that I am thankful. He is my sweet, funny, quirky little man and I wouldn't change him for anything. I love you Alex, and I always will!

Ashley Perkins
North Manchester, IN

Efrain

Efrain

This is my wonderful son Efrain, he is 2 and a half years old and he was diagnosed with Autism. Me and his mother notice that he wasn't speaker, a lot of hands movements and flapping he will do, and loves to play with anything that has strings. We call for information, me my wife and my mother did some research. We did the whole progress and he was diagnosed with Autism, I remember crying that night alone just thinking about it and looking at him while he sleeps. Friends and family will tell me that God Gives gift and a child with Autism is a beautiful gift. It hasn't been easy but its been FUN. My son loves hugs and kissing loves music and love to dance, love to feel sand and loves water, loves to play, he is very fun to be around with. I'm proud to say that I support Autism Awareness. I'm proud to say that I have an Autistic son. Every day is something new I learn about him. He has teachers that comes over and thanks to them my son knows how to count to 10 and knows his ABC's till the letter G. I give thanks to God for the strength and for my Gift.



TILL EVERY PIECE ''FITS"
Daddy Loves You

Efrain sanchez
Philadelphia, PA

Autism: The Unexpected Journey

Autism: The Unexpected Journey

My name is Shaina Barnett. I am 22 years old and a student at a community college in my area with high-functioning autism. I was diagnosed when I was only a toddler, in 1994. The funny thing was, I wasn't truly aware of being different until I started asking myself why I could not somehow click into the crowd of kids in my classes. I was about 8 years old or so when my mother gave me the talk of autism. She said it was a gift I was given from God and with it, if used correctly, I can do wonders, move mountains, maybe even change the world. Of course, at the time I did not believe her. I just wanted to be able to play with the other children and share their experiences without being ridiculed or told of my faults. Middle school was such a nightmare. Other students knew I was different, but they used it as a weapon to break me. They pulled cruel pranks on me and called me hurtful names. Being a teenager at the time is hard enough, even without having autism. My safe haven was drawing comics, writing stories and poetry, and singing. Years went by and I felt I began to grow and blossom into a young lady. But I could not have done it without my high school mentor who was also my beloved homeroom teacher. We still remain very close. Being in and out of social skills programs gave me tools to be able to talk among my peers, however, I advanced past the expected curriculum. When I attended a Jewish summer camp, it greatly build my self-esteem and helped me grow to be the adult I am. I'm proud to have such possitive experiences. I thank my superhero of a mom for being my support and my rock. She was right all along. I don't think of my autism as a curse; if anything, it is my superpower, a power that not even DC Comics or Stan Lee could come up with. I have been BLESSED.

Shaina Barnett
Van Nuys, CA